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Be the public voice in NHS data decisions! The East of England Secure Data Environment (SDE) is looking for members of the Data Access Committee (DAC) to help shape how NHS patient data is used for research.

Why it matters:

• 50% of DAC members are from the public, ensuring that community perspectives guide decisions.
• Members review and discuss project applications, helping to decide whether access to NHS data is secure, ethical, and in the public interest.
• This is a unique opportunity to contribute to the responsible use of health data and have a real impact on research benefiting patients and communities.

Get in touch or find out more https://forms.office.com/e/CpJ2Le8b6Q

Public members of the DAC will be offered an honorarium of £25.00 per hour for attendance and active contribution at meetings and pre‑reading of required materials. You will be provided with a form after every meeting for you to submit a claim for an honoraria (as a cheque or voucher) if you choose. It is important you consider what effect any payments may have on your tax or benefits. You can choose to decline payments or request a lower amount for any reason.

All meetings of the DAC will take place online, via Zoom or Teams on the last Friday of every month between 1 – 2 pm. Dates and times of monthly review meetings will be published 3 months in advance and are anticipated to follow a predictable schedule in terms of day of the week, time and approximate duration. General public members are requested to indicate unavailability for upcoming meetings as soon as reasonably possible. Where general members have not indicated unavailability, they will be assumed to be available for invitation to the following months meeting.

For a typical meeting, 4 general members will be invited on the basis of their availability, any specified areas of interest or expertise and to allow all general members to attend a roughly similar number of meetings over the course of a year to maintain a consistent pool of reviewing experience.

Additional public members will be invited from the specialist public member pool where are a suitable member is available, or from the general member pool to make or exceed the required number of public members for a DAC meeting to be quorate and to maintain a consistent pool of reviewing experience across our public members.

Each DAC meeting will last for 1 – 2 hours plus up to one hour of pre‑reading preparation for each meeting (up to 3 hours total per confirmed meeting). Public members should expect to attend 4 – 8 regular meetings per year, with up to 10 invitations. Specialists could expect to attend around 2 meetings each year, but this will vary depending on application topics and availability. Public members are asked to commit to a minimum 12‑month term to support continuity and consistency of decision making across the DAC. There is no maximum term, but this may be reviewed over time, in collaboration with public members and members of the East of England SDE Core Patient Advisory Group.

Read the full details and please complete the form - https://shorturl.at/vJoSb

We’re looking for people who are genuinely interested in the fair, transparent and equitable use of NHS patient data for research – this is the key criteria we consider for DAC members.